NICU Set up
They spent today, May 30, slowly adjusting settings to accommodate what she "likes" and keep her numbers steady. In the picture above, she's lying on the table at the center. Her ventilator is sitting in the left foreground (with Mom standing behind it where she can look at Clarity's face). The bank of boxes with green glowing screens on the right are her medicine pumps. They deliver things like an IV but with an extremely high amount of precision. They also deliver the drugs in a very steady, slight amount by verrrrry slowly emptying a syringe rather than in "drips".
My mom and Q's parents made it over to visit her today. Q's sister watched Wil for most of the day so Mom could take care of me but then I got to see Willow for about an hour in the late afternoon when Mom brought her to the hospital. Luckily, she's totally comfortable with all of the family who has been watching her but it makes me sad that I haven't been able to give her much time and attention this week. Unfortunately, there's something about the surroundings that is making her a little unsure about me right now. She won't snuggle on the hospital bed with me and I'm not physically able to get in very many positions down at her level to play. I also can't really hold her. Once again, I'm so grateful to have so many family members who she knows and trusts. They have come together as an amazing support team over the four days we've been at the hospital. Among both sets of our parents and siblings, they have managed to keep the cats fed and new seedling garden watered at our house as well as providing a stable network for Willow.
Hopefully, I can visit Clarity again tomorrow but I'm not going to push to have them discharge me just yet. Even though I'm feeling great, I don't want to overdo it and end up unwell and miserable. Even today, everyone couldn't believe how well I was doing less than 24 hours after a c-section. Patience is not something I do well but I hope I'm able to admit when it is something I need to reconcile myself to. There's not a lot to do for her over there right now anyway. I sang and talked to her and stroked her head and arm but she just needs to stay sedated and sleeping to get big and strong.
I didn't get it posted here, but we've also got a picture of her without her cap. She's got so much hair! I also think she has Quentin's nose.
We're still in the "honeymoon" period and I'm trying not to get too optimistic but we just need to keep hanging on to this trajectory and she'll pull through. We all know that the rollercoaster ride is just beginning though.